The goal of the Lifestyle and Exercise in Hypertrophic Cardiomyopathy Study (LIVE-HCM) is to determine how lifestyle and exercise impact the well-being of individuals with HCM. Whether you like to walk, run, play baseball, or sit and read a book, you can participate in this study. By participating, you will help us learn more about lifestyle factors and HCM, which will help all HCM patients make informed decisions about what they want to do. This study is funded by the National Institutes of Health.
The safety of vigorous exercise for those with HCM is unknown, and current guidelines recommend that HCM patients refrain from participation in competitive sports more vigorous than golf or bowling.1, 2 Despite these guidelines, a recent survey has suggested that some patients with HCM do participate in more vigorous sports.3
This study does not endorse competitive sports for HCM patients. Rather, we want to obtain information on the risks and benefits of exercise at all levels, by following individuals over time at whatever level of exercise they are currently engaged in.
1) Maron, Zipes, et al, 36th Bethesda Conference: Eligibility recommendations for competitive athletes with cardiovascular abnormalities. J Am Coll Cardiol, 2005
2) Gersh, Maron, et al, 2011 ACCF/AHA Guideline for the diagnosis and treatment of hypertrophic cardiomyopathy. J Am Coll Cardiol, 2011
3) Reineck, Day, et al, American Journal of Cardiology, 2013